Biobank's assurances get broken yet again
Promises were made to participants, and to the Houses of Parliament, and Biobank broke both of them.
Biobank’s Internal Report is out – it’s not what was expected – you can read all the details on medConfidential.org
We’ve stated the process of going through the whole thing – we’ll add part 2 at the bottom when it’s finished.
The Biobank breaches, and the response to them, matter because of the plans for the Single Patient Record – and the recent precedent of breaking the promise that “pandemic only” data was for pandemic-only uses, which means the data can now be reused however Biobank and other “Approved Research Studies” choose.
What the Biobank Direction started will continue for the euphemistically named “unconsented cohorts” – i.e. uses of data of patients who have not explicitly volunteered for research – that remain under discussion. An “unconsented cohort” when Biobank cultural architects argue non-communicable chronic illnesses are “global pandemics” with a pandemic style response for ‘people who breathe’ or ‘people with hearts’.
Is this superficial report what we should expect from NHS data abuses in the future?